Permission to Take Part in a Human Research Study
Title of Research Study: Genetics of Personality Type
Investigator: Denise Cook, Ph.D., M.Sc.
Research Scholar, Ronin Institute (www.ronininstitute.org)
We are interested in correlating personality type (measured using the Myers-Briggs Type Indicator) with specific gene variants, a study that requires a large number of participants. We are therefore looking for participants who already have genotyping data and are willing to share their data with us. You must be 18 years or older to participate.
If you have questions, concerns, or complaints, or think the research has hurt you, please email the research team at firstname.lastname@example.org.
This research has been reviewed and approved by an Institutional Review Board (“IRB”) at Quorum Review, located in Seattle, Washington. Office hours are 8:00 AM to 5:00 PM Pacific Time, Monday through Friday. You may ask to speak with a Research Participant Liaison at 888-776-9115 (toll free) if you have any questions, concerns, or complaints that are not being answered by the research team.
The Myers-Briggs Type Indicator (MBTI) measures the ways in which humans differ in their preferences for perceiving, interpreting and making decisions about their environment. It sorts people into 16 personality types, each having unique strengths and weaknesses. These differences are thought to be influenced by our genetic makeup.
We are interested in locating the genomic regions that correlate with personality type, which will eventually help researchers locate the genes influencing personality. This is important research because it will help us better understand how specific genes give rise to particular behaviors. As a result of this study, we may be able to predict personality type from genotyping data, a result that will greatly impact personality research and other fields, but may present significant future ethical challenges.
Your participation in the online questionnaire portion of this research will last approximately 1 hour. The analysis portion of this study is likely to take several years.
We require about 4000 people to participate to find meaningful results.
You will be asked to first register and upload your data to Gencove, a company that is creating a database of genotyped individuals for use in research and product development (www.gencove.com). A screen will then pop up, asking you to allow Gencove to share your genotyping data with this research study by pressing “Continue”. If you agree and press “Continue”, you will be directed back to the study website to complete the official MBTI and the Nardi Personality Indicator, both questionnaires that will aid in determining your best-fit personality type. We expect most people to complete both questionnaires within 1 hour. You will then be asked to provide your own choice for best-fit type.
You will be provided with feedback about your best-fit personality type and be invited to follow the progress of this study online, including any resulting publications.
You can leave the research at any time and it will not be held against you.
You can leave the research at any time and it will not be held against you. Any of your data already included in analyses cannot be withdrawn or deleted, but your data will not be included in future analyses from the time your consent is withdrawn. If you decide to leave the research, please contact the investigator at email@example.com.
There is little risk of discomfort from completing the questionnaires, since the insights gained from the Myers-Briggs Type Indicator are inherently positive.
There are however, information risks to providing us with your genotyping data.
Since genotyping data is uniquely identifiable, we will use current best-practices for securely dealing with genetic information. We will be accessing and making a copy of your genotyping data by interfacing with Gencove's database using their secure API. Transmitted data will be encrypted using SSL. Transmitted data will include a unique barcode provided by Gencove, but will not include your email address, username or any other identifiers collected by Gencove (IP addresses, etc). Your data will be stored and analyzed using cloud-based services provided by DNANexus, a company that complies with various US and International regulations and standards surrounding the use of genomic data in research (www.dnanexus.com). We will not attempt to re-identify you using your genetic data.
Despite our efforts, we cannot guarantee that your data will never be released in the event of a security breach. We estimate that the risk for such a breach is low but not zero. A breach of genomic data could lead to re-identification and leak of traits linked to your genetic data. This information could be accessed by insurance companies, doctors and others. Since parts of your genome are shared amongst all family members, a data breach may impact the private information of your family as well.
While there are no direct benefits to you from participating in this research study, you may benefit by gaining knowledge about your personality type. Specifically you may gain a better understanding of your strengths and weaknesses, decision-making style and communication style. You will not be paid for participating in this research.
Upon receiving results of your questionnaires, any possible identifiers will be deleted. You will be identified only by the unique barcode provided by Gencove. Raw data will be managed privately, accessed only by study staff and other authorized individuals.
The results of the research study may be published, but your name will not be used. Once analyzed and published, your data will be stored indefinitely for auditing purposes.
The person in charge of the research study can remove you without your approval. Possible reasons for removal include inability to determine best-fit type, problems with your raw genotyping data and other technical issues.
The research in this study may lead to new products, research tools, or inventions that have financial value. Participants will not be able to share in the profits from future commercialization of products developed from this study.
Please select your choice below. You may print a copy of this consent form for your records. Clicking on the “Agree” button indicates that:
- You have read the above information
- You voluntarily agree to participate
- You are 18 years of age or older
If you want a copy of this consent for your records, you can print it from the screen.